論文

査読有り 国際誌
2020年2月1日

Conceptualization of a good end-of-life experience with dementia in Japan: A qualitative study

International Psychogeriatrics
  • Mayumi Nishimura
  • ,
  • Ayako Kohno
  • ,
  • Jenny T. Van Der Steen
  • ,
  • Toru Naganuma
  • ,
  • Takeo Nakayama

32
2
開始ページ
255
終了ページ
265
記述言語
英語
掲載種別
研究論文(学術雑誌)
DOI
10.1017/S1041610219001017

Objectives: To conceptualize a good end of life for people with dementia from the perspectives of bereaved family caregivers in Japan.Design and participants: A qualitative study using in-depth, semi-structured interviews focused on the family caregivers' perceptions of their loved one's experiences. Family caregivers who had lost their relatives with dementia more than six months previously were recruited using maximum variation sampling by cultural subpopulation. A thematic analysis was conducted.Results: From 30 interviews held, four main themes emerged. A good end of life for people with dementia means experiencing a Peaceful Death while Maintaining Personhood at a Preferred Place allowing for feelings of Life Satisfaction. A Preferred Place emerged as a basic requirement to achieving a good end of life according to the three other themes, in particular, Maintaining Personhood. However, the interviewees experienced difficulties in ensuring that their loved ones stayed at a Preferred Place.Conclusions: Despite different cultural backgrounds, perceptions of a good end of life with dementia were remarkably similar between Japan and Western countries. However, recent societal changes in family structures and long-term care access in Japan may explain the theme of a comfortable place taking a central position. We suggest that these themes be considered and translated into care goals. They could supplement established end-of-life care goals for quality of life in dementia, which aim to maximize functioning and increase comfort.TRIAL REGISTRATION NUMBER Ethics Committee of the Graduate School and Faculty of Medicine, Kyoto University (R0808-2)

リンク情報
DOI
https://doi.org/10.1017/S1041610219001017
PubMed
https://www.ncbi.nlm.nih.gov/pubmed/31455444
Scopus
https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85071458298&origin=inward
Scopus Citedby
https://www.scopus.com/inward/citedby.uri?partnerID=HzOxMe3b&scp=85071458298&origin=inward
ID情報
  • DOI : 10.1017/S1041610219001017
  • ISSN : 1041-6102
  • eISSN : 1741-203X
  • PubMed ID : 31455444
  • SCOPUS ID : 85071458298

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