Apr, 2019 - Mar, 2022
Structuring of experience of the parents who bring up severe motor and Intellectual disabilities make a shared decision-making.
Japan Society for the Promotion of Science Grants-in-Aid for Scientific Research Grant-in-Aid for Scientific Research (C) Grant-in-Aid for Scientific Research (C)
- Grant number
- 19K11023
- Japan Grant Number (JGN)
- JP19K11023
- Grant amount
-
- (Total)
- 2,080,000 Japanese Yen
- (Direct funding)
- 1,600,000 Japanese Yen
- (Indirect funding)
- 480,000 Japanese Yen
What greatly affects the post-decision psychological state of the mothers who are responsible for their children's surrogate decision-making is the degree to which their children can live peacefully with the medical devices and disabilities brought about by their mothers' decisions. For example, a tracheotomy allows the child to "breathe easier," or PEG is added, which "eliminates the pain of inserting a tube through the nose. On the other hand, mothers' lack of understanding of their children, such as "he/she can't go to school" and "they don't care about my child," greatly lengthened their worries after their surrogate decision-making.The interviews with the mothers made us realize that the value of "with disability," which has been discussed in various fields for many years, is still strongly negative in society. The interviews also suggested the need for the medical field, which is often the first place of encounter, to be proactive in changing the values of disability.
- Link information
- ID information
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- Grant number : 19K11023
- Japan Grant Number (JGN) : JP19K11023